We do have loving moments together, although he no longer knows who am I. He still cares deeply about people. . . he was a physician–but it’s who he is.

My mom is an amazing woman who, like you, believed that she should do it all. In the past five years, she has finally realized she cannot. And it’s okay.

I’m putting together a list of books on my blog that I’ve read that might help people, feel free to share it with others:
http://yakkergirl.wordpress.com

God bless you both in your journey, and know that even though he cannot express it, he does still love you–just as my dad loves my mom.

I’m sorry your father has Alzheimer’s, Sandra, and I hope you continue to find (and share) books and blogs that are of help. I agree with you about caregivers—they are my heroes. Last month, I gave a keynote address before the National Lifespan Respite Conference in Maryland and had the opportunity to meet caregivers from around the country. I’m touched by every caregiver that I speak with and feel honored that so many are comfortable sharing their stores, and tears, with me. There’s a connection and understanding among caregivers that runs very deep.

Thank you, too, for your kind words about my interview with Terry Gross on NPR—I was thrilled by the opportunity.

I wish you and your father many loving moments together—my conversations with Ed change over time, but my love for him doesn’t. And we’ll always be able to hold hands.

Thank you for writing, Wayne. I’m sorry it’s taken so long to get back to you—I’ve been traveling around the world advocating on behalf of Alzheimer’s awareness and caregivers while also exhibiting my photography and signing books. Life has been busy, and all forms of social media dropped from my screen (literally and figuratively.) I’ve been home for the last month and have been spending wonderful time with Ed and generally catching up on the many things that have been put on the back burner. I’ll begin traveling again very soon, but I will try to find time to write at least one blog catching everyone up on my life and Ed’s.

One of the books I have found most helpful about understanding this process from a personal persepective is “Finding Life in the Land of Alzheimer’s: One Daughter’s Hopeful Story” by Lauren Kessler.

God bless, and thank you for sharing your work and words.

Blessings to you and to Ed.